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In April 2021 I had a Cochlear Nucleus 7 implant surgery. I am to this date unable to comprehend voices clearly. I hear static and noises all around like traffic, sirens but not voices clearly. I returned to ask Dr. ** to remove the implant. He talked me into giving another try. I have. Without wearing the sound processor the magnet gives me constant migraines. I had progress the first six months, then it went to static. I must be one of the rare cases that proves unsuccessful. I don't fault Dr. **. I would simply prefer it be removed.
I contact them a million times for a processor that I return a year ago and they boosted and because of that I can't order more accessories. They block my buying account. My insurance paid in full and they still can't resolve this issue. I expend hours on the phone and nobody can't help me. Very bad service. Terrible!!!! Be careful. Before get your implant Surgery seek more options.
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The audiologist who adjust the sound don't listen, when they can't get it right, they just tell you to get use to it. Wish they had to plug their ears and wear one for a few days so they can listen and understand what we're taking about. I don't feel as though the engineers consult those who have worn bone conductions their entire life, based on the product's I have no other choice to wear, because Cochlear now has the monopoly of bone conduction aids, putting companies that know what they were doing with the bone conducting aids out of business. The only other company is in Germany and you can't buy them online or in the US.
I am politely extremely upset with this company and their very below par heading aids that they have claimed to be high tech and the best one the market. Yet, It squeals if anything comes near it. I could wear my Starkey all day and to bed and not squeal the whole time, I could lay on the mic and still hear. Now I have to constantly move the device to prevent squealing, in order to lay down and watch tv. I can never get the volume right, never had that problem before. The sound is either too loud or not loud enough. They put the BAHA post implant to far back and high on the skull, making the sound unbearable and incoherent. The BAHA is either constantly popping off the post implant or what I've switched to the sound bar band, which again un-functional, I have modify it to go over my head instead of behind, because it won't stay in place or provide enough pressure on the bone to get a good conduction, behind the head.
The rubber on the band disintegrated in only a few weeks due to constant readjusting the BAHA tabs on the band. Also, they forgot to consider those without ears that are blind w/out glasses and unable to wear contacts. It's been a year and I'm still trying to DIY a way to keep my glasses on correctly. Didn't have that problem for 45 years until now. I mistakingly allowed myself to be convinced into getting the Osia implant in 2020. Can't wear it, won't a on at all, and the sound is worse. The device as a whole is 1,000 times worse, They're are too many dysfunctional details to write a lot of which are similar to the BAHA.
I'm a very saddened client who just wants her sturdy non complicated holds her glasses and has been around since 1974, if not longer heading aid back. If isn't broken don't fix it. I know I'm not alone, everyone who had the old but good hearing aids have posted everywhere to find more. I was able to snag one more 7 yrs ago, before they all vanished.
I had the implant surgery done six weeks ago -- and had the Nucleus 7 processor activated three weeks ago. I'm wrestling with tinnitus issues. I've had tinnitus issues for years -- can hear it at night. Unfortunately the tinnitus is on the side where the implant was done -- and the implant seems to be amplifying the tinnitus. It's going to be a struggle -- but it is early in the day. I have heard some sounds that I haven't heard for years -- the clicker on the car turn signal, the tire noise from cars passing on the freeway etc. So I have hope.
4 years ago, my audiologist highly recommended a specific surgeon for my CIs. I was deaf in one ear & had NORMAL low-tones-only residual hearing in my other ear. Audi promised me much better hearing, clarity in voices, & better hearing at music. Surgeon warned me before 1st CI that I could lose my hearing & music, but I had nothing to lose in my deaf ear. 1st CI greatly complimented my good, normal low-tones-only residual hearing in other ear. However, I did not receive same warning nor did this surgeon follow up with audiologist to protect my good, normal low-tones-only residual hearing in other ear.
After 2nd CI, I am now deaf in that “good” ear, can no longer hear music, & ALL sounds are horribly distorted - permanently. I can no longer lipread like I used to either. Surgeon failed to warn me before 2nd CI, as he did with 1st CI, or he should have simply refuse to do 2nd CI. I lost a huge part of my quality of life. “Bilateral CIs was better hearing” & MRI on both ears was only good for 6 months (can no longer have MRIs if you have CIs) was emphasis in convincing me to decide on CIs for both ears. Huge, huge, huge mistake.
There are other options to try before drastic CI in a “good” ear. Additional post-surgical issues include losing balance for an entire year, relearning took hear again thru practicing many hours on various apps, & finding any comfort levels to tolerate distorted hearing on my iPhone’s Cochlear app. Changed audiologists several times & some improvement, but my cochlear hearing now is worse than when I had good, normal, low-tones only hearing in good ear. I filed complaint with Florida Health Dept with obvious proof of deceptions & malpractices by both audiologist & surgeon, but they decided in favor of medical professionals.
Cochlear implants are definitely a buyer’s beware issue, especially if you have Medicare & another insurance carrier to pick up difference. This was a death sentence to me - l lost music that I enjoyed so much & all quality hearing compared to my current cochlear hearing. I had hoped to hear my grandchildren better, but they now sound like little men or robots. There is much money for cochlear implants to be made for the audiology & surgeon professionals - don’t sign their surgical waivers either.
My son upgraded his equipment less than one year ago. Replacement equipment does not have the original 5 year warranty, it has a 3 year warranty and does not come with a backup processor. The processor began having troubles and a new one was ordered. Cochlear is sending a refurbished product. Families and insurance companies pay full price for new equipment but the warranty only replaces it with used equipment. Once the equipment is replaced the original warranty dates do not change to reflect replaced equipment, the original 3 year date is in effect.
I was born profoundly deaf since birth (4% out of 100% on the left & 0% on the right), wore hearing aids from 4 yrs old to 57 yrs old, most of 'em are useless, wax, whistles, blocking, wet inside etc. Decided to go for assessment in Dublin Hospital (Beaumont) after applying for the implant, went few times, including test & MRI scan. They asked me why I want a implant, I told 'em, my dream is to listen the music, always a dream. Appointment for surgery in 2018 November, switched on two weeks after, first time I heard was funny metallic or cartoon like noise, six weeks later, the sound settle down to normal cos my brain was getting a hang of it..
First time I heard my dog walking around in my house, I never knew his paws does make a noise (clicking noise from his nails), heard various birds singing and calling, (crows are terrible lol), listening the music awesome, I could sing 4 songs (sing alone or only to my kids), I never imagined that I can do that, amazing. I was lucky to pick a right processor, Nucleus 7, because it paired with my Iphone Apple. I could listen the music by Youtube on my mobile in my pocket while I’m working, my boss don’t know that, cos I’m only one can hear (by Bluetooth on my Mobile). Thank you to Beaumont Hospital for making my dream come true..
My hearing quality after 2 1/2 months is no better, in fact worse than before my surgery. The distortion, constant buzzing has made by hearing worse in a quiet environment and no better in a noisy environment. Music and voices sound totally different and nothing like before the surgery. Cochlear also charges for each appointment to program the processor which wasn't stated up front and atypical in my hearing experience with hearing aid companies as I was never charged a fee to adjust a hearing aid.
I have had Cochlear implants for 6 years and had both sides implanted for 5 years. I was close to totally deaf. Now I can hold international teleconferences. My hearing 'acuity' is that of a 3 year old. My hearing discrimination is around 90% even in noise. This is remarkable. BUT I needed to work at it. The best analogy I can give is think of a 'autostereogram' those patterns that you have to stare at unfocused and then you 'get' a 3D image. Cochlear implants are like that but for hearing. Initially making out words, sounds etc., is difficult but with practice your brain gets it right. Read that last bit again - it needs practice and can be difficult.
So what about Cochlear the make implants. I was given a choice and I chose Cochlear as they seemed to be built for mishandling, not that I mishandle but I didn't want delicate! The latest ones come with a whole set of things, rechargeable batteries - mine have lasted that 6 years. A bluetooth hub which you can use for linking to phones with bluetooth, a remote microphone that you can use to listen to someone a bit away or perhaps the driver of a car if you are in the back seat. A TV 'streamer' that provides continuous audio stream from the TV. And a clever remote control that saves having to learn the button presses on the processors. Of course what you also get is a set of little user guides that are written by someone who knows how the stuff works so misses steps and who reads them anyway right?
I note a comment above about not being able to turn down/off ambient sound - well you can do that but you need the remote control and you can balance external sound volume against streaming sound for both TV and telephone. If you turn external sound right _off_ then you stop hearing yourself - a little disconcerting. SO - after 6 years I would not be without these implants. There are some times when I hear better than people with no hearing problems. I have had one processor fail in the 6 years but I can get a refresh to the new Nucleus 7 processor now. Yes there are design issues I would have liked different. They should have used native bluetooth for their radio equipment. I don't know why they can't use the processor microphones for phone calls rather than wear a phone clip/microphone. And there are more Android devices than Apple so why initially only support iPhones?
But overall this has been a really good journey. All the people – audiologists, surgeons and Cochlear staff I have met – have been very friendly and helpful. If you are thinking of a cochlear implant - go to a surgeon that does a lot and then whatever brand of implant you use you will wish you had done it earlier. I have no regrets having chosen Cochlear. 3 months and I move to the Nucleus 7.
I had the Nucleus 7 implanted in May 2019. Had terrible side effects, so I can understand the person who had tinnitus. My doctor said no one has those side effects. well, I did and it was not pleasant. The only option they had was to remove it so I changed doctors. The side effects nearly killed me. By mid-August, I was able to start hearing more talk than static. So I am grateful for that. I doubt had I know what I was going through I most likely would not do this again. I found the corporate office folks not very responsive to this. FDA, on the other hand, took my issues under advisement.
Cochlear author review by Rosemary Avance, Ph.D.
Founded in Australia in 1981, Cochlear Limited is a leading cochlear implant manufacturer. It was the first company to receive FDA approval for implantation in adults and children the United States. In 1984, Cochlear introduced the first multichannel system to transmit multiple sound frequencies. More than 450,000 people have been implanted with Cochlear brand implants. The current model is known as the Cochlear™ Nucleus® System. Cochlear also offers a combined hearing aid and cochlear implant system called the Nucleus® Hybrid Implant System and a bone conduction system called the Baha® System.
Smallest behind-the-ear cochlear processor: The Cochlear™ Nucleus® 6 Sound Processor is the smallest behind-the-ear cochlear implant processor. It uses dual microphones to minimize background noise for optimal sound quality.
Discreet off-the-ear option: Cochlear implant users have the choice of an off-the-ear processor called the Kanso™, which was introduced in 2016. It is available in eight colors to match your hair or skin tone and is ideal for those who want a discreet option as well as those who wear glasses.
Low profile: The internal stimulator or receiver is thin, so it creates less of a raised profile through the skin. This results in a device that sits closer to the scalp.
Five year warranty: Each component of the Nucleus system comes with a comprehensive no-questions-asked five-year warranty, which covers the sound processor, coil, cable, magnet, remote, and battery holder and cover.
BAHA implant options: Cochlear offers two BAHA implant options for people with conductive or mixed hearing loss: The Baha® Attract System leaves the skin intact, while the Baha® Connect uses a small abutment through the skin.
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